The Zebra Tapestry Project is a multi-media campaign Healing NET Foundation is kicking off in 2019 to capture the many words, voices, and images of the neuroendocrine cancer community. It takes all of us, whether a patient, caregiver, researcher, provider, advocate, or industry supporter to create awareness and education about this “rare disease.” It is a disease that appears to be increasingly less rare, as the prevalence in the U. S. is estimated to be over 170,000. There are approximately 20,000 new cases a year in the U.S.
In Telling Your Story or uploading your video, you can give hope, education, and inspiration to another patient or caregiver; you can bring awareness to another colleague; you can make a big difference in fighting NETs. You never know who your story will touch.