EDUCATIONAL PROGRAMS & PUBLICATIONS

Patient Education

Navigating the NET Patient Journey: Valuable Insights and Resources for Living with Neuroendocrine Cancer

Navigating the NET Patient Journey was written in 2020 by a group of support group leaders, patients, and caregivers, who are on the NET patient journey themselves, in the hope that fellow patients and caregivers can benefit from the roads they have traveled. Includes expert opinions and resources.

High-Grade: Neuroendocrine Cancers: A Guide for Patients and Caregivers

Healing NET worked with medical experts, patients, and caregivers to compile this guide, which was released in 2021. The publication outlines assessment and treatment and specifically addresses ways to meet the challenge of a high-grade neuroendocrine cancer diagnosis.

Education for Healthcare Providers

Neuroendocrine Tumors: A Primer for Healthcare Professionals is an educational tool by NET experts for fellow healthcare professionals on the front lines of care for NET patients. Updated in 2019, the Primer is full of best practices and considerations when supporting a patient with neuroendocrine cancer.

Healing NET has valued education of healthcare professionals from the beginning. We continue to develop new programming in collaboration with partners and NET experts. Find more on provider education here.

Awareness & Support via Website & Newsletter

The Healing NET Foundation maintains this website with information about neuroendocrine cancer care and sends out a monthly newsletter. Read TEN FACTS ON NET to understand why raising awareness of this disease is crucial. The website includes spotlights on patient and caregiver experiences—see ZEBRA STORIES in the navigation bar.

COLLABORATION IS THE FOUNDATION FOR HEALING NET PROGRAMS

International Healing NET Summit

The Summit is a meeting of the Healing NET Scientific Advisory Committee and other invited guests from North America and Europe (click for a list of those who have attended). We gather these thought leaders to identify current gaps in care and to envision the future of patient care. This think tank has helped form a collaborative network of engaged professionals. Read more.