NETS 101: Resources for the Newly Diagnosed

Carcinoid Cancer Foundation provides Newly Diagnosed the Basics, which leads also to Newly Diagnosed 2: carcinoid.org/for-patients/diagnosis/newly-diagnosed-the-basics/

NET Research Foundation netrf.org/for-patients/newly-diagnosed/

National Institutes of Health (NIH) rarediseases.info.nih.gov/diseases/13445/neuroendocrine-tumor

Learn Advocate Connect: A Neuroendocrine Tumor Society (LACNETS) lacnets.org/newlydiagnosed

NorCal Carcinet norcalcarcinet.org/newly-diagnosed

Neuroendocrince Cancer Awareness Network will send an information packet to patients and families upon request netcancerawareness.org

International Neuroendocrine Cancer Alliance (INCA) has downloadable PDFs, including by primary tumor site incalliance.org/net-info-packs/